Friday, September 13, 2024

Isolation & Shelving Grows Dementia

What if some of the "problems" of Alzheimers and other forms of Dementia were discovered to be more social rather than physical?  

Cultures other than the American system of caring for the elderly have provided evidence many behaviours and actions can be managed without drugs or "shelving" people in an institution.

This includes activities both mental and physical provided in Adult Day Care Centers and Long Term Care Facilities which generally shelve or "park" people with Dementia at certain levels or stages.

Understanding which parts of the Disease are manageable and moving to ensure resources are available is critical. 

Why aren't we cross applying findings in medicine and behavioural studies to benefit Dementia patients?

Touch.  Many of our elderly go from day to day only experiencing the touch of another human being providing necessary medical procedures or daily life skill assistance.

I've seen more caring from the receptionists and cleaning/maintenance staff at Mom's SNC than I have from most of the CNA's, LPN's, the RN and the Adminisrtative Staff at the facility.

How long would a baby, infant or child survive and how greatly would they thrive if we denied this comforting human interaction?  

Remember the children adopted from foreign countries who were isolated, denied human kindness/touch? 

Speech. How often does someone sit and talk or involve more than one person in a conversation -- even if the majority of the talk is done by the "caregiver"? 
                                                                                  
Human Contact.  Visiting A Loved One. Look around, say "Hello", stop a moment to talk. Give the gift of a moment of time so valuable to those for whom time seems to be never ending between times of human contact.

Recognize the humanity of all with whom you come in contact while visiting a loved one in a facility. 

Spend a moment; give someone the greatest gift -- human interaction.

Most "interaction" at Mom's facility has a purpose -- analyzing and charting. 


If someone doesn't want to participate in the group activities at Mom's center, it's entered on a chart.

When I visit I see many people who barely get out of their rooms and who are becoming more and more "dependent". 

Some may have mental challenges but many of those seem to have "developed" with the systems and procedures used in the facility.

One dog and one cat live at Mom's facility.  The dog is older and very set in his ways. He used to take the elevator, go to various floors and "roam". Now, he lays around, has put on lots of weight and often moves away when people approach him -- or sleeps most of the time. 

The cat is "isolated" in the Activities Room so only those people who visit that room get any interaction and she, too, is a loner.

Occasionally
 a couple of dogs are brought in to "visit" residents and you can see the joy in the Resident's eyes and in their bodies. 

They virutally light up and wait patiently hoping the dog will be brought to see them. 

A few residents have family members who bring in dogs to visit.               
Unfortunately, these dogs often don't see anyone but their owners and I understand they're not all "trained" to accept other people.

What's needed is more frequent interaction of residents and animals.

Humans thrive using our senses. When they're deprived or eliminated, at any age, our body functions are greatly affected along with our brains. It changes our personality, our outlook, our behaviour.

Let's find more ways to give Seniors interaction with humans and pets. Let's stimulate their brains, their positive emotions and build healthier lives for all.
                       

Shining A Light

Each State determines its rules and regulations for Long Term Care and Residential Facilities housing our Elder Population.

Federal Regulations only step in when Medicaid or Medicare are somehow involved in the resident's care.

State Regulations vary and are vague. 

Anyone know of a law in your State requiring an "Open Door Policy" where publication of all operational expenditures including all compensation is public?

They are businesses. Plain and simple. They change hands and the general public is usually uninformed directly.

Long Term Care Facilities are closed societies.

The more they accept State and Federal funds, the more closed are the doors that open to the families and the public.

Standing behind the concept of being "private" and/or of personal rights holding high these signs to hide violations and significant profitability.

In the United States, we have open meetings, value input and contribution, welcome providing reports and opening doors and windows into operations and management.

NOT IN LONG TERM CARE FACILITIES.

Many are owned by private individuals and businesses.

Corporations that do not operate with an "Open Door" policy.

The most vulnerable in our society confined and controlled.

Transparency is critical. These are "Medical Facilities" in operation without the mandate to furnish documentation required of other medical entities.

Who actually owns, operates, is on the Board?

Ask for a list of "approved" Doctors that oversee and administer medications and medical decisions for your loved ones.

We've had "Baby Monitors" for decades. 

What do we use to ensure the safety/well being of Seniors?

AI provides abilities to "watch", "observe" and ensure the safety and well being of our children.

Why not for our loved ones with their  or POA permission and consent?

Why can't a 'Personal Representative" be appointed to '"attend" meetings, Dr visits.

Mom and my husband both wanted me to be with them at their Dr appointments. I was never informed when, who or why.

When you enter a Long Term Care time stands still and personal lives change dramatically.

From your home, you make a Dr's appointment and can accompany your loved one being their eyes, ears and asking questions to ensure Mom's or Dad's needs are met.

Try to find out when a Dr might be visiting your loved one.  Most visits on the phone and it takes a "major" event for a Dr. to actually visit in person. Virtual? Stuck in last century.

Not what the standards are supposed to be but then who really  reads those reports, what "oversight" is there other than the sending and receiving of "reports" without a personal visit to ensure well being and safety.

It's changing! Can be heard in the halls and at local presentations where LTC's are never mentioned by name and seldom any discussions on anything to do with the staff, facilty or residents.

Where? When? How? Not in Long Term Care. 

If it is, where, when and how? 

Should be Front Page News on the Internet.

If you find it, let us know. 

Progress for human rights should come first in all States.

Friday, September 6, 2024

Gimme

What’s with this surging need?                                                                                 Demands the old hand over, recede.

I can stand or lean any way I choose.

At my age, not much to lose.


I sit and type and wonder why

The words come flying out of “the sky”.


Have they been hiding all along

If so I’ll use them as My Song.


Am I poised to live and learn

Will I continue to actively earn?


So many questions, far less time

Will I burn or will I shine?


Does it matter any way 

If I choose to have my say?


Like bursts of light.

Words join as if in flight.

 

Like Geese in the air

They join and create.


They fly away

To live another day.


Winter is harsh

It hides their food.


We humans see.

We’re not fools.

Each finds their own tools.


To survive and to wait. 

Knowing there is an expiration date.


While we can, we do.

When we can’t, we won’t.


Today I have the choice.

Today I raise my voice.


Megaphones can screech

Across the electronic page


Telling me I’m worthless

Just because of “age.


Then why, tell me please,

Do you want to incur


More candles each year

To blow out in a blur?


You can’t wait to age 

You see it as a “perk”


Let me tell you, my “friend” 

That’s acting like a “jerk”


Value what you have

Embrace where you are


Soon you’ll hear the shouts

Causing you to doubt


Others have been born

They demand a place


Wanting to take yours

It’s going to be your fate.


It’s a life story

Filled with doubt and worry


Stand up, speak out

It’s never too late


Spread love

Not hate


Strange how survival is seen as distress

It causes concerns and such a mess!


From what we achieved

And refuse to “secede”.