We realized we were not alone in our experiences. Advocating, becoming involved and networking, we heard stories similar to our own about Undue Influence, Abuse, Neglect and poor Senior Caregiving.
Generally, people who have these experiences are often consumed and confused just trying to survive another day dealing with dementia.
We've decided to raise our voices and provide actual personal experience with Dementia/Lewy Body Dementia) to build awareness and provide opportunity for advocacy and change.
There are a few prominent and easily recognized people on the "cutting edge" trying to change how Seniors with Dementia are seen, cared, and provided for.
We found one of her videos when searching You Tube sometime after Mom was initially diagnosed with possible/probable Lewy Body Dementia in the mid or late stages.
At that time, there was very little on Lewy Body Dementia available on the web; this was Spring 2012 and it seems like an eternity has passed instead of just two years with the NEW and visionary entries on LBD on many sites. (Reposting this entry; it's now November 2023 -- almost ten years since my Mom passed.)
Teepa's approach to caregiving for Dementia patients focuses on her work with patients directly as an Occupational Therapist.
In Mom's facility, almost all Physical Therapy was provided in a special area or room with varying types of equipment. It was "prescribed" and therefore could provide revenue.
In facilities and leaving hospitals for Rehab, the coverage by many private insurances and definitely through Medicare/Medicaid, is geared towards physical therapy with occupational therapy seen as aiding stroke victims and sometimes to regain basic skillsets like eating, dressing and other personal care areas.
The reality in many facilities is the Activity Department is the one that is given the responsibility of developing "social interaction" and various other areas.
What Teepa teaches are ways to live, work and play with individuals in various stages of Dementia. She also specifically addresses Lewy Body Dementia, how it differs and specific ways to cope with this roller coaster Dementia.
IMPORTANT NOTE: Teepa provides programs to various organizations and groups, some of her more informative presentations are located on sources not accessible through just searching You Tube with Teepa's name. Suggest as we have done you use her name and also a subject area like: Lewy Body Dementia.
You'll bring up various videos including one by Whoopi Goldberg who's become a spokesperson for the Lewy Body Dementia Association.
Listen, Learn and Spread The Word --