Personality Change With LBD

Lewy Body Dementia is a very clever disease.

It seems to "wait in the wings", on "the sidelines", giving direction and coaching in the beginning.

As the disease progresses, it begins to become the lead player, replacing the person with its own persona.

Taking over. Becoming someone "different" to the world. 
Being seen in its full regalia, finally, by those who care give, those who care about, and those who have the responsibility they've taken on as "Care Giver".

A fellow traveler walking alongside and sometimes running to catch up with the changes, the differences, the needs of Lewy Body Dementia.

Life is Reality when you are fully involved; it's unreal when you choose to put yourself in another place and time.

You, there! 

Who sit in judgment, believe you "know what's best" . . .  

Hand out, reaching in other pockets, always "in need".

Turning your back when others could use your support.

Where are you? On the sidelines? Living far away? 

How often do you visit, make time to stay with a person with Dementia and provide a "break' to the caregiver to sleep, read, go somewhere to walk, exercise or have lunch with a friend.

Tearing apart, blaming, accusing, believing "they" are the cause and not a medical condition with no side path just a road of unknown length and challenges.

Questioning even criticizing telling the person trying night and day to cope, to manage, to ensure safety and well being . . . 

You DEMAND and you ASSERT from your safe and separated "living arrangements". You may even "make a trip" to visit shunning spending time finding ways to really help, maybe delivering a "special photo album" but never coming alongside or offering "respite" by ensuring a break for the real caregiver(s).

Separating yourself rather than coming alongside?

It's far easier to push and shove the "caregiver" around and  always finding fault than to actually participate and give support.

It's never right, never enough and always used to strike out when support and consideration, appreciation are needed.

For years you've turned your back or at least "let another or others" do all the "dirty work" involved in caregiving, walking away, only reaching out when you believed there was "something you could get", you punished anyone who would not give in to your "me centered" demands.

You tear apart the primary "caregiver". Refuse to recognize a person can have Dementia and has had it for some time.

You can't recognize real Elder Abuse -- it's far easier to blame a family member than an "outsider".

You demand and accuse -- so you can feel "excused".

Reality Checklist:

Those who care give for a family member with Dementia face daily mental and physical challenges, illnesses and afflictions.

They stand alone while standing beside and walking along their loved one's winding, steep, and ever changing paths.

Struggling through the present into the unknown of the future,

there is no specific direction and often no markers or guideposts that apply.

You who attack, you who blame and strike out verbally cannot accept there are life changes you cannot control. 

You hold everyone but yourself responsible and accountable to a standard beyond their ability to provide.

You refuse to accept change, believe you can erase the present while not seeing the future if you discredit the past.

You refuse to listen, to become involved or want to take over "from a distance" because your time is so valuable.

It's "their" challenge, "their" problem . . .  if any problems really do exist, you tell yourself.

You twist and turn reality without spending real time with the person who needs the care, without being supportive choosing to attack, criticize and blame.

You visit,  for a short time. You leave. You may be close by or hundreds of miles away from the day to day and the constant fluctuations of a disease you will not recognize or believe is there and another lives daily with the ever changing challenges.

You do not tend constantly to the person's physical and emotional needs and the few telephone conversations you have you write off any "challenges" to poor transmission, the person's "hearing", or any one of a number of possible excuses.

You see the past, not the present. 

You cannot cope with reality. 

You create what you need, what you can accept.

Love is blind, so they say. So is fear of loss.

All forms of Dementia including Lewy Body Dementia wear many masks, playing many parts as it moves through the brain and the body causing challenges and removing abilities.

As a society, We do not "connect the dots". We see TIA's, high blood pressure, falls and other "signs" as not being a part of the process of LBD and other Dementia. 

Wake up, get up, take action, advocate, above all realize 

Dementias, especially those less known like LBD, are a

thief in the night we allow to ravage & control when we do not recognize their abilities to tear people, families apart.

Family Life Multi Gen Style

 A Penny For Your Thoughts

Old saying, let's up the ante in the first part of the 21st century.

Come on, you can add your two cents worth.

Oops, another faux pas. What's your time worth these days.

Use that as a ruler and measure your current age by your anticipated "end date". 

It's for perspective. It's reality.

Lifestyles vary and continue to change shape through decades.

Living Together: accepted; a common practice. Think "Friends".

Cohabiting without marriage:  a commonality with "the event" being seen as a social rather than "sacred" joining together.

'Weddings" beyond personalized into the "zone" once reserved for specific socio-economic classes or celebrities.

Ceremonies everywhere your heart desires and usually aiming to "outdo" or "one up" to show "waiting was worth it".

Multi-gen families are seen by many as being a practice of low-income families or immigrants who can't afford to live otherwise.

"Roomies" can be male/female/similar ages but NEVER should they be an actual family unit of kids, parents, grandparents.

 

Not for everyone; multi-generational cohabitation requires giving, taking, sharing and caring.

Short-sighted, self-serving, lost opportunities and possibilities say some, more responsibilities shouldered, more "mouths" to feed and unnecessary challenges in "today's world".

 

Listening, learning, sharing, caring, giving, receiving,

understanding growth, development and most of all, aging.

We built an inclusive family with three generations under one roof for four decades.

No lifestyle has guarantees. Life is what you make it.

 

Moving from Chicago to Philadelphia to St Louis (two different locations).

We recognized value, understood inclusion, worked through differences and learned valuable lessons.

From one infant, adding two more along the way, several jobs, a few businesses.

 

What about privacy, intimacy, who makes decisions and who is “in charge”?

Few differences from "regular life"; you reap what you sow.

You learn consideration of others, recognizing and accepting differences.

 

Growth and development, learning to accept and understand change and decline.

Not a “built in babysitter” or someone to “break the tie” in a disagreement.

All ages and stages, all capabilities and capacities from birth until end of time.

It takes a village used to be a common saying. 

 

Understanding one another starts in the home where memories are made.

When we have direct ongoing contact, we learn first-hand.

More multi-gen families might be the answer to halting generational distancing.

We build bridges to connect, not ditches to separate.

Hidden Away In Plain Sight

Dementia is challenging for everyone. 

If you live together, concerns focus on "who" you're living with today.

If they're living in a special environment, you carry the concern when you visit and when weather or circumstances block your visiting. 

It's often like an emotional ferris wheel, one day they're up, the next they're down and you never know how far in either direction.

Today, not tomorrow, if you have a loved one, create a Power of Attorney for Health Care WITH THEM and make several copies ensuring you have one in your phone and one in your loved one's file with their primary care Doctor if you plan to use their services as Dementia advances. Carry it with you at all times!

Marriage and relationships where it's your Mom or Dad, your Sister or Brother, Aunt or Uncle, do not carry any weight even if "they" want you to help them, be their eyes and ears, you will need that paperwork.

I've heard horror stories about "discord" in families and spouses being told they had no "rights" if they didn't have the paperwork.

We learned the hard way, caring for a loved one who lives with you is easier than in another residential environment.

We had no intention of Mom going into a "Senior Residence" aka Long Term Care. Our plan was to live together, as we had for four decades, through to her time when she would leave our family forever.

Our plan was usurped by a woman with other 'intentions". You can read about the ordeal we went through in other Blog Entries"

Remember, also, time and circumstance can cause complications in the best of plans. Have another family member (or friend) of another generation or age group as a "secondary" and even multiple family members designated for specific areas like medical, home maintenance, sales of real estate and or valuables, end of life planning.

Dementia is not "one size fits all". Even if you have lived with someone for decades, you'll possibly see behavior changes as more frequent experiences. 

Sometimes it's medications; don't write everything off to"Dementia".

One friend has a husband who wants to talk and be heard -- sometimes for hours on end. She has activities, interests that are full time and involved. Even though she worked in highly responsible jobs requiring extensive time and capability, "he" sees her "being around the house" where she now bases as much of her business as possible, as being "always available to give him full and constant attention".

It's not always about finances, it's about being "on demand" and for women it's like returning to having an infant, toddler or young child who wants "your" attention and may even sulk, stomp away or cry--just as a child who needs to be "front and center" in your world.

In these times, remember the past filled with absences, need to work, travel for business, not able to attend School functions, missing the actual date of an Anniversary needing to be across country or around the world -- for the "wish" it wasn't that way.

Life happens, we call it "controls" when actually they're choices made yesterday or years ago, believing they were "for the best" now showing signs of tarnish and soon become unused or even useless.

Look for the patina showing through in unexpected times. Value what exists, remains, is shown. 

Remember. it's not choice driving the person, it's often misconnected memories and recalled actions. 

Our mind stores many years of life experiences and actions.

The mind "confused" by Dementia, may not have the ability to "sort through" or "find" applicable or even acceptable words or actions.

Caregivers: Remind yourself this is someone who loved and was loved, struggled and overcame many life challenges, fought for right and justice, gave of their time and money, put others above self.

They are there, standing, sitting, even laying in a bed, before you.

Time spent today isn't yesterday but for loved ones it's as valuable.

Dancing With Lewy Body Dementia

You carry a torch when you give others a light in the darkness of seeing, knowing and advocating for those experiencing the challenges of Living With LBD.

There are resources today we did not have with my Mom and yet there are stories of living with Dementia, by individuals in 2024, still containing words of struggling families and spouses trying to understand this "thief" taking over their loved one. They don't know what's happening, why it's happening, where to look or haven't met someone, llke me, who Advocates, reaches out through personal contact & online. One resource that has grown, developed and provides a resource for support as we walk with those we love is the Lewy Body Dementia Association. It's become a resource for me and for others who try to understand and cope with any behavior we see but do not understand. The words help to shine light on what, why, how we walk along the road, the path, the journey we started. It's so different from the corner we turned somewhere along the way of marriage, a relationship, friendship, being a daughter or son or anyone who regularly connects with a person we love but do not understand what is happening. The following is copied from an email I received and I hope acceptable to the Lewy Body Dementia Association I've copied and pasted it here for you to read.   In our support group for those living with Lewy, we often engage in enriching discussions surrounding the rollercoaster of emotions that can come with LBD. Recently, we delved into the topic of frustration and agitation, recognizing the unique challenges they pose for everyone involved. In collaboration with those who have lived experience with the disease, we created five tips for those with LBD and their care partners to keep in mind while navigating these difficult feelings. 5 Tips for Managing Moments of Frustration Think about the ‘why’ behind moments of frustration. Are there potential physical, emotional, spiritual and/or psychological factors or perceptions that are influencing these reactions? Is there something you can do to proactively get ahead of a future issue?  Ask yourself if there are accommodations that can be helpful insupporting you or should space be given in certain moments?  Try to remain as calm as possible. This can allow everyone involved the opportunity to de-escalate, even those with cognitive changes and challenges. Show appreciation when things work, rather than only reacting when things are not as effective. It can also be important to clarify what is not helpful too - being honest can lead to improved solutions. It’s important for everyone to feel loved, safe, heard, and understood. Ask how your environment could increase or reduce your frustrations. Can changes be made to reduce future frustrations? My Personal Thoughts React less. Observe more. Walking into someone's life whether into a room or into their lives requires pausing, observing, listening and learning. Gymnasts, ice skaters, dancers focus on where they're going from where they are. Dementia is another "dance" in life. Where they were and now are, requires mentally moving from one place to another. Dementia focuses on wherever the mind has stopped, rested or jumped to. Waiting. Anticipating. Forgetting. Remembering.  All can happen slowly or within a split second. Multiple changes can occur inside the person, before you see or hear an action or a statement. Be grateful for the moment without reflecting on where you hoped you would be. It is time, spent together, being with, listening to and feeling fulfilled. Follow where you are led even if the destination can't be seen or heard existing in the mind and heart of your friend, relative, parent or grand-parent. They see what they see, feel what they feel and move from moment to moment into and out of places you barely recognize before they enter another. Do not miss the present moments wishing to return to past times.  Place value in where you and they are even if it seems to be different and unknown. Love needs no common ground when what is seen and felt is your presence. Value what there is and set aside expectations and usual practices. It's the journey not the destination.  Time shared to recall at a later date. It's a gift of self and that is the most valuable of all.

Another One Bites The Dust

We’ve all done it.                                                                                                               Greatest Gen, Boomers, Gen X, Millennials --and survived.

You’ll make it through struggles, joys, twists and turns, 

More to do than time and money.

Just stop wanting to “take”.

Realize you receive more from “giving”.

You want the cities, bring them back to life.

Work in those groups of friends you have.

Work together. 

Develop those “old skills” you worked so hard to get past.

Revival through recognition.

YOU built the places to call your homes for generations.

They never go out of style 

No matter how many creators there are.

Crafters are critical, the backbone of generations. 

Builders and remodelers, past and to come.

Most of all, yesterday you shine, today you tarnish.

Tomorrow you’re seen as broken.

You, too, will be “replaced”.  

Your time will have vanished, unwanted, disrespected.

To those you and your friends gave the greatest gift, life itself.

What "goes around, comes around".

Generations have taught us to be careful what we say and do.

"Do unto others as you would have others do unto you"

Setting aside the wisdom, 

believing there's always "a better way".

Following those who use us only as stepping stones 

to get what they want, must have, need to get past, 

places us next in line to receive what we have given.

The brain should be fed by the senses, not controlled by them

Societies values determine their lifetime as influencers.

People who follow and practice destructive philosophies are those who eventually reap what they have sown.

When we sit at a machine believing it will provide all our answers we forget we are still in control . . . for the moment.

The future is there, right in front of us.

We either clean up the present 

Or face the time when we "fit the mold" we've made.

Go visit, learn, join, research validate resources, share & care.

You are privileged to build your life, construct it well.

Visiting Mom's Grave: Mémories of Generations

(As valid today as it was when I first wrote this entry in August, 2019 about the time following my Mom's death in January 2014:

Needed to feel close again and that meant traveling to Mom's gravesite; a journey of more than 100 miles round trip but worth the time and providing some peace now that I've returned.

Mom was a constant reminder of personal strength and endurance against all the very difficult times and struggles life puts in your path and on your plate. She was always there for me.

Daughter and I are both trying to find full time jobs; we're both working part time and together we can make enough to hold on to our home, buy some groceries and keep the car running -- hopefully. 

With full time jobs, we would be less concerned; these are "gigs" we've found and always waiting for the next one to "appear".

We both had the day off. She needed to return early afternoon so that meant our journey began in the morning.

It's been difficult at my work lately. Challenges I'm not sure I want to continue to endure but because it provides the basis for our keeping a roof over our head and food on the table, I've stuck it out and know I can't walk away until I find another. Not so easy "at my age".

Mom's life was her example to me of personal strength and caring beyond yourself. I miss her. At times, more than words can say.

Her death is more recent. My husband's is more than eight years as I write and the "adjustment", the "setting in" or settling, like his grave, shows more adjustment to the surroundings and to where he is....now. 

Mom's grave has become a little more covered by grass but being in a very rural area (albeit a growing small town area), I don't think they've sown any grass seed but waited for the "natural growth" to take over. There are still a couple of bare spots.

Daughter and I traveled mostly in silence. Each of us having our own life challenges to think about. 

She was the only grand-daughter Mom had and I was her only child, her only daughter.

Mom's face glowed with love for both of us until the day she passed knowing I had my wish, a daughter, a special relationship like we shared for so long, to continue life's journey alongside.

I'd talked about cutting daisies and some remaining daylilies from our garden to take with us and then forgot until we were well on our way. 

This time, that time, my mind was focused while spinning and trying to cope with today like I have with so many yesterdays.

We drove along the highway and suddenly I remembered I'd forgotten to cut the flowers. 

Towns are closer together today than when I was growing up and the road is a divided highway -- not the old one lane in one direction and another going the opposite.

Thankfully I remembered before we went so far that there were no major shopping centers, no place that might have flowers.

Of course, it's today, not "the last century" and there was a major brand store just off the highway where we could buy the flowers and anything else we wanted or needed or not.

We chose pink mini carnations. Roses would wilt too soon and other flowers looked so unreal with their florescent painted petals in shockingly electric colors. And, our funds were very limited.

They needed a bow, I decided, for when we removed them from their plastic wrapper. But a bow didn't seem right. I spotted a tag, a small white gift tag with one word in silver writing: "Love". Perfect, I thought, and daughter agreed.

The drive to the cemetery is off an old "main highway" into the heart of the town that dates into the 1800's. 

Strange how today it's a turn into a new age as we pass modern homes being built and then past a golf course that actually skirts some of the drive to the cemetery. 

The road is narrow and passes a couple of older farm houses and then there's the turn. The road I remember and see again as though through my eyes as a child. It's the same. It's different. 

Recent mowing by what appears to be a large piece of equipment has cut down all the wildflowers I remember growing along the way. 

They used to be what I picked to put on my grandparent's graves as we drove for a visit before heading back across the great river that separated my life from my Mom's old life.

I'm glad we stopped, I think, to pick up the flowers.
The old life is truly gone; no flowers along the way. 
Changes. Differences. 

But the graves, the stone markers, the love that once was and still continues, remains.

I remember Mom talking about her relatives, many of whom now lay in this ground, in this special place where people are gathered together for one last time.

It's different from where my husband now lays. His current resting place is a large cemetery full of religious icons and much larger and grander markers with a few smaller but not spanning as many decades.

Mom's resting place has a couple of larger stones and even some places families have "marked off" with curb like enclosures but mostly gravesites scattered here and there showing placements as far back as the mid 1800's.

People from a small town. Many helping one another; some standing aside and not reaching out. No difference from the "big city" is the small town, just more people, more possibilities.

We visit Mom's site. No headstone yet. We haven't been able to afford one. Maybe that's been somewhat good. I notice some are set on longer stones and raised a little. I like that. 

A mower's gone through here, too. There's perpetual upkeep and being a smaller community the maintenance is better.

Daughter and I wipe some remains of the cut grass from different relatives markers. 

Reading names of Grandparents, Aunts and Uncles, people who chose to return here although so many moved away, across the big river, to other towns and even across the country.

Why here? Why did they choose to be buried in this place?

Why did my Mom?

Family. Community. Continuity. 

When life began they were together and now that it has ended, they're together again.

Not all. But many. 

It was her wish to be there and later in her life she made sure she purchased a plot, alongside her oldest sister who was still alive. 

This Aunt isn't buried here, ironically. Her daughter decided to bury her Mom nearer to where she chose to be buried. 

I gave my Mom the resting place she chose even though it's so far from where I believe I'll be and the area where we were so close for so long.

I'm glad for these times I make to stop, to reflect and renew myself whether it's in this place or another.

It's an odd cemetery by some standards. Corn fields surround the burial sites. The road leading to it is paved and then becomes a gravel road until you get to the cemetery and wind up a small hill on a dirt and gravel road that skirts the perimeter and then crosses through the spaces to return to its beginning.

Last time we visited there was a flock of killdeer birds visiting. 
Today it's busy with dragonflies.  

I hear birds calling to one another and listen to the sound of a gentle wind through pine and other trees. Not a lot of trees but enough to give shade and majesty to the site.

Daughter and I start to leave and then turn back. I forgot I wanted to take some pictures of family sites and also of possible headstones. 

I liked the ones that were raised a little off the ground, had their fronts standing straight and not on an angle, were engraved with a few flowers and had a vase attached so flowers could be left by those who visited, those who cared.

I also liked the plaques that had been set in a piece of concrete at the foot of a few graves. Many were placed to mark the service of a man in the military but one had a message of love and caring.

Funny. Never thought about how many in our generation didn't buy the burial plots as early in life as their predecessors. But that thought struck me today.

Was it because my generation had so many new drugs and medical abilities and women didn't die in childbirth as often? 

Or was it because our life expectancy, so we thought, would be like Mom's and not like my husband's?

I told Mom many years ago all I wanted when she passed was to be able to place on her headstone "She traveled the world and now she's on her greatest trip" or words similar to that.  

I gave her the gift of travel; of using her retirement money to go places she'd only read and dreamed about.

My gift to her was a life change from the major challenges she faced as a young girl, a married woman and a woman faced with raising a child by herself in a time when divorce was not acceptable and single parenting totally frowned upon.

Thanks, Mom, for once again being there for me, if only in memory.

I'm also at peace, knowing where you are and visiting that resting place where I know you're "home" with family.

And, by the way, as we wrote, Happy Birthday! 

Love You. We Miss You Very Much.

Forgive Manipulation & Control?

Forgiveness.

Is it turning away, offering the "other cheek",  saying you "forgive" even when the abuse continues?

Why have we become a society that "honors" forgiveness above all?

Why do we believe we MUST forgive to be "forgiven"?

Why do some religions believe one person acting on behalf of a higher "power" has been granted the exclusive right, the privilege to "forgive" and so one can go, confess and receive "forgiveness"?

What about the person who has been violated, harmed or their life or death affected by the actions of another?

Once upon a time there were gradients of "sin" and recognition that "sin" was, rather than today's philosophy that we can categorize certain actions and "dismiss" them if they are "moved to another realm" -- the realm of "mankind's" responsibility and therefore not within "the church's" responsibility?

I admit I don't understand and the older I become the less I do.

The only thing I seem to see is the person who is "forgiving" of another releases the power held by another in providing forgiveness. 

Or do they?

When the action, the words, the deeds continue, how can forgiveness accomplish a release for the peson who has been and continues to be "wronged" by another or others.

Why should a person or an entity be allowed to be "above" regular law and to condone through silence any and all transgressions from those who may appear to be "practioners" of theirs?

Have we become so willing to forgive and forget we've surrendered our lives to being manipulated and controlled?

Many Masks of LBD Dementia

The old saying "Hindsight is better than foresight" is never more true than with caregiver's family or friends of loved ones with Dementia.

Current studies cite the appearance of specific behaviours as being the "keys" to diagnosing Dementia.

Many forms cannot be specifically cited or identified until there's a post mortem examination of the brain.

It doesn't matter if someone has Alzheimer's, Lewy Body, Frontal Temporal or others, they have Dementia.

We need to recognize Dementia as the next big "C" disease (Cancer). 

It's fatal, physically and emotionally draining, it's also destructive and stops life as we know it with  its needs, wants and directives.

These reports often become fixed on the decline of mental processing and bodily functions including standing, walking and incontinence as determiners of type and stage of the disease.

Are these really effective measures of Dementia's progression? 

Are we simply focusing on those areas we consider "more important" and use to determine the "level" of the progression and level of caregiving?

When are we going to recognize Dementia, especially Lewy Body Dementia, doesn't appear like Cancer often does with a lump you can feel or Heart Disease with a stroke? 

Lewy Body Dementia often masquarades.  As I wrote in the blog entry: Masks: Ever Changing Faces of Lewy Body Dementia , LBD is not always visible. 

People with LBD, in the beginning stages, to my experience, seem to be capable of adjusting their minds, are "socially conscious", even far into the progression of the disease.

They may laugh about "what they've just said" and even mix and match information that seems to go together to the "untrained" and "unfamiliar with the subject" ear and eye. 

Another observation I've had with Mom is how vacillating Lewy Body Dementia really is; behaviors were so unpredictable. 

It amazed me how caregivers at Mom's facility and especially the floor nurse, an LPN, believed we could affect her behavior or we could change it or Mom could choose to change it.

Unfortunately, these are all false beliefs about a real, medical condition that like Diabetes, Heart Disease or Cancer, cannot be controlled or adjusted through "willpower" or "determination".

The other night at a presentation, the message was conveyed by a gentleman about his wife and how she could somehow, if she just tried, control or affect actions like sitting up in her chair. 

It was his wants and needs for her to be who she's always been, not who she was becoming.

At one moment, perhaps she could. 

After a long period of time and a good day when for some reason her brain neural pathways had shifted, changed or somehow let a message "slip through", my Mom in the latest days, might make that movement or give that response we'd sought but not seen and desperately wanted to be there, to have the ability to "return" to the Mom we knew for so many years.

Like a trained animal, we reward the Advanced Dementia patient who shows us they "can" do something, hear something correctly, respond correctly, with a smile, words of encouragement and even with statements like "I knew you could do it if you tried hard enough".  

How grateful I am now realizing that with enough advancement of the Dementia this level of self satisfaction on the part of the visitor, the family member, may not truly register with the person struggling with Dementia.

Of course, there is the other belief, and one popular today, about "the right medicine" controlling and eventually eliminating the disease.

It may be more like eradicating Cancer. 

Controlled to some degree, possibly, perhaps, but the ability to eradicate may be more challenging or accomplished with some form of discovery that shifts development and progression.

You may find the causes of some and you may be able to change behaviors (smoking) or where you live (not close to where chemicals have been dumped) and therefore not get a specific Dementia (Cancer).

Unless someone determines there is one specific cause for Cancer -- possibly a genetic tendency or even lack of certain configurations/compositions -- Dementia, like Cancer, in my opinion, will be with us for many years to come.

Dementia may be seen as being prevalent in the very elderly but each passing day we're discovering, as we grow from an infant to a toddler, through adolescence and into adulthood, the vast frontier of the brain and how it is the center of the individual human universe. 

And, now we're classifying other brain diseases, Muscular Dystrophy and Parkinson's for example, into the area of Dementias.

Let's have a movement within society to be as health wary about Dementia as we are about Cancer and heart disease that affect human relationships and lifestyles.

Let's open the discussion, bring into the light, show the world we see, hear and most of all support those who are challenged with and from Dementia including the individuals and their care givers whether family or other.