Death of a Loved One: Crossroads & Lifelong Scar

So many have come and gone since the deaths of my husband and then my mother as I look at a calendar. 

Husband in January 2011 and mother in January 2014.  

Moving into this "holiday time" with memories of loss of loved ones brings tears and laughter.

Changes, differences, accomplishments and achievements, positive and negative... it's life as it was becoming, life as it was lived before, and eventually years after, both were no longer living and with our family.

My Blog has captured a thimblefull of the waterfall of life experiences and many challenges that seemed to be insurmountable.

We faced each one, my daughter and I, rowing the life-boat through one wave after another that started small and grew to  tsunami size.

I recall last Summer, early one morning, daughter left for a day on a local river. Ever the mother, no matter what her age, I find words to express a little concern and a lot of love -- typical Mom stuff -- as she makes time to enjoy this special opportunity to be with friends. 

Swimming pools were not everywhere when I was young and so I never really learned to swim. I tried and made sure our three had swimming lessons and shared time with friends "on the water" and we took trips to beaches.

I "learned" to be around and sometimes in, but never really "took to" swimming pools, lakes and even the ocean. 

They can be beautiful, they can be treacherous, I love to look, admire and put a foot into, but an avid swimmer I have no interest in being.

Events we experienced along the way, during and afterward; many are still fresh and even influential in our life choices while others seem so far away, so distant and almost surreal.

How long has it been?  Really......? Or, That  Long ?!?  Family funeral on my husband's side and I'm surprised but then realize everyone's life takes different paths and only occassionally do we meet at a crossroads, like a family funeral.

Perspective. Compare it to if you're playing the music or listening -- most people don't pay attention to the individual notes, the notations written by the composer or even the exact nuances provided in the interpretation by the conductor. 

Those who participate in the action of the moment while it's happening, those who are most connected to the event, usually are the most influenced and affected.

Why is the death of a loved one like a lifelong scar?  It hurts when it happens, in the healing process there's concern for how long it will take, if it will ever heal completely and if it will someday be "unnoticeable".

The scar is a reminder. We choose how to see it and it will vary in appearance many ways many times as we move forward continuing our journey.  

Some will change their lives completely and the scar will minimize or even seem to disappear. 

Others will carry it and it will grow more prominent as the days, months and years pass.  

Finding the balance in life with this time and what follows is the key to continuing moving towards carrying, shifting the load and moving positively onward.

The "shock" of discovery, of finding 'hidden agendas" and "planned deception" and realizing it was like a puzzle where pieces were around you but not seen.

You look around and spend time while your loved one is in the hospital with Doctors and staff.

You attend "meetings" where the advice is -- "He needs to gain weight. He needs to eat more." It was a "continuous chant" by his attending staff including several Doctors.

They knew the truth. They created the problem They tried to hide it by creating a notation in the "patient record" stating a male Doctor who was not in attendance made an incision. "HE" was a "SHE" and not a Doctor.

The "scar" appears when your loved one leaves you -- it's there to remind you, invisible though it may be -- a precious life was lost and Hell on Earth was created by a voice on the phone directing a procedure without having the ability to see the physical area and who should never have asked someone who did not have surgical training to "cut into".

It took days and weeks spent in a special hospital area spending time that should have been spent alongside my husband but instead had to be spent in front of a computer picking away, line by line, paragraph after paragraph, hundreds, if not thousands of pages, for a hospital stay of 100 days.

It just did not add up. Why was my husband not getting better? Gain weight! That was the constant "mantra".

Medical Records tend to be challenging to comprehend. A lot of medical jargon and the continuity is lacking. It's not like reading a book or a magazine. It jumps around as each person "attending" each "incident" or "action" happens.

Then there's the "medical language" which requires a medical dictionary or sometimes interpretation.

The most alarming part is when you stumble across an entry where you were present for what happened and you see . . . 

A FALSE, MISLEADING AND DECEPTIVE STATEMENT

You should have sued many have said. 

Why did they falsify information, I was asked.

When crisis after crisis is happening and you're trying to find some way to understand what's going on, discover a link to a procedure which was totally wrong, done by a "woman" and NOT a "man" as was stated in the record.

NOT done by a Doctor, maybe not even a Nurse, or at least not one with any form of knowledge concerning the history or condition of the Patient she was told to "cut into" 

Or ...the knife slipped and instead of "lancing" it became cutting 

...Maybe, because of the status of the medical situation, she was not medically capable or trained specifically at the level needed for the procedure mandated by the Dr on the phone call and "she" was not medically capable enough to do anything other than FOLLOW ORDERS GIVEN BY PHONE 

. . . Question came to mind: how many "procedures" in ER's are directed by a Doctor on a phone call to someone in the ER and what qualifications are mandated by medical procedures for someone besides a Doctor to perform in an ER?

...Dr was not available in the Emergency Room at the time and "she" called one who made a decision without seeing the "patient" or "examining" him.

NOTE:  For those of you who are wondering why we did not sue the Dr or the Hospital -- death, financial challenges just hanging on, no one advising us to take that step, a friend who was a Doctor at the Hospital we thought '"had our back" .

The complications of responsibility of living as a family unit with my Mother who was experiencing more physical, medical and emotional needs and so we moved forward in a different way.

The addition of my husband's older brother being admitted to the same ER a few "doors" away with serious medical concerns and finding out his oldest daughter was taking her father "home" as she said,"to die". 

Aging Mom with medical challenges, brother-in-law in same hospital with complications of a daughter wanting to "get it over with" with her father.

Calling my second son to tell him about his father's advancing condition being told he was walking in his father-in-law's funeral procession.

We hadn't talked for a few days and the news was like a knife cutting through as I looked down at my husband, my son's wife's father-in-law, with rising concern for another life -- old wive's tale about death coming in three's when it comes in twos.

Today, I somewhat regret not pursuing what I feel was a major medical mistake. And, that they carried it farther and put my husband through a "procedure" where they "explored" the area which had to escalate and cause the extended stay, complications, and I added to his traumatic death.

They at least had the decency not to provide us with a bill commensurate with his stay but we had so many other costs and losses.

A Lifelong Scar I carry with me. 

One that will possibly never completely heal.

Sharing & Caring Builds Awareness & Action

I want to share my shock/surprise when I returned from my last trip in September to learn more about Senior Living and Senior Life Challenges and saw a number for visitors I thought I misread.

Surely that was 2,000 -- not 20,000? And climbing! 

Thank You. Please continue to read and pass along!

Look at the diversity, the inclusion, the wide and wonderful world!

United States, Germany, Canada, United Kingdom, Finland, Singapore, South Korea, France, Czechia, Brazil, Netherlands, Vietnam, Australia, Cambodia, India, Hong Kong, Israel, Sweden, Indonesia, and even a category marked "other"!

I wrote to "let it out" as the grief over not being able to see what was purposely hidden by the system throughout our country called "Senior Support" and "Long Term Care" is destructive and demeaning.

. . . and being told by one particular close family member I was harming people I loved, valued and respected, who lived on the other side of the country and rarely took time to connect or visit.

I'd start writing an entry and sometimes it would be days or weeks before I returned to add or complete one to publish or hold for the future. It wasn't an "easy write".

Last I'd seen, there were a few hundred "hits". Admittedly, I didn't check frequently, it was a "diary" of sorts yet hoping others would see the truth and the challenges needing to be changed.

After the trip, it was over 20,000 "visits".                                                                              I thought I'd read the number wrong.    

LBD, Lewy Body Dementia, had become more "visible" possibly because some well known celebrities disclosed they had this form of Dementia. Whatever woke us up as a society, it was a call to change.

It was so amazing to know someone, somewhere saw the light I was trying to move through the darkness of family life living with LBD.

My words reach around the world. . .  I am not alone!

My courage to walk onto this space, to share times that were life disruptive for our family.  To include my "self"; show how vulnerable, uniformed and lost I was; but the return could be others who didn't have to walk through the pain and suffering.

Trying to find a way to survive, to show "what's behind the curtain" of aging. Expose people who wear masks; harmful actions taken in trusted places.

We were and continue to be a family changed forever. . .                             

Thank You for giving me the courage to share and to continue to work toward more enlightenment.                                                                     

To change the desperation and darkness created by others, to hope for a better today, tomorrow and the future

For all ages and stages, everywhere a voice can reach, through the written word translated and understood.                                    

We face the unknown together sharing what we learn, bringing light into darkness and hope replacing despair.

Seniors Avoid LTC Like The Plague

When you no longer have the ability or the means to pursue life interests and you find yourself in a Long Term Care facility . . . 

Let's look inside where then and now are existing in a time warp because WE don't see reality . . . 

Until it's thrust upon us . . . and that's too late.

Come along with me to visit Mom's old SNC/LTC facility or drop into one and really look around, listen and learn. 

Mom stayed in her room; sat in one place; busied herself with what she had or found to do; and, waited ...waited...waited

to be told what to do, when to do it and how to do it. 

And this was when she was highly capable; it became far more challenging when she began losing capacity and capability.

Have you been told there will be "choices" and  many "opportunities"? Not in the "lower cost/lower class" mostly populated by "lower income producing and qualifying for Medicaid" residents.

No one really cared. 

They were understaffed and few families visited.

Mom had to initiate and show an interest, we were told.

She was taken to what she considered "mindless" and "childlike" activities that held no interest and she was bored.

The only computer in any type of accessible area was "off limits" and no resident was given permission to use it at any time. 

The computer waiting for an employee of the facility who had been given the ability to use it yet it sat in a room that was available to residents for "special occassions" by reservation.

We did not have the financial means and Mom's monthly check from Social Security went directly to the facility. 

Entering LTC, Mom lost the ability to control any of her SS. 

She was given about $30 a month and that was quickly taken from her in "services" from the facility. 

We provided for Mom, both daughter and I, working at low wage jobs with the goal to provide what we could and keep as much of our "prior life" functioning -- a roof over our heads, food on the table (no Food Shares back then), the lights and a/c or heat available even if only at the lowest levels, and more.

Mom "went into" a LTC not through our decision but through the manipulation and control of a "Church Lady" who came into our life.

One positive outcome was since she was "self admitted", 

I was able to finally get back into Mom's "good graces" after several months and she shared how the facility really treated her and we started searching for a "better place".

 

I looked long and hard to find for a facility that Mom qualified for -- we had to have her in Medicaid because she had no resources, no ability to pay, at that time, $3,000 to $5,000 a month for a shared room/bathroom. In today's marketplace, that figure can be even higher.

Those marketing pieces and glossy pictures and videos don't portray the reality of almost every SNC/LTC facility. Under staffed, run by people who focus on the bottom line (even the Not For Profits) and constantly besieged by more and more paperwork and less and less time to devote to services -- they are as "shelved" as the people they serve.

If you have the ways and means there are "better places".  But few in the Greatest Generation achieved the high financial status then required now to secure "good care".

Today's Baby Boomers are being "pushed" by many to get out and move to an apartment or residential facility. It's thought of by many as being "appropriate" and then "somebody else" has to shoulder the responsibility, the wants and needs.

Take a moment and stop, think and consider. 

What If YOU had to enter a Long Term Care Facility . . where would you begin, what would you look for, who would make the decision with you? 

Who gets good care?  Those who can afford it, with family members that include a doctor/nurse, attorney and well connected in the community. 

Like life, it's isn't just you get according to a cost,  you receive according to having influence and ability to affect outcomes.

Multi-Generational Living: Yes, YOU Can!

In November, 2010 , we ended our journey as a multigenerational family living together in the same home started in November, 1971 -- almost four decades.

I've written about a small part of that journey with Mom -- in reality a very small segment of about four years of the more than forty we lived together moving as my husband moved up the corporate ladder and then when he chose to "go out on his own with his own business" -- and the challenging time when an abuser came into our lives.

It's not a "new idea" -- it's been practiced for centuries among many cultures and it's been highly successful--multiple generational living under one roof.

What changed this practice for the Western World? 

Some say it was industrialization -- moving from rural to city areas and then to the suburbs. 

Some say the houses were "smaller" ---yet many "made do" in small apartments in the city with multi-generations; not everyone has had or has a home in the US and doesn't in other countries.

When did we start not being "neighbors", "family" and "friends in need"?

Yes, there are adjustments, concessions and even learning a "new way" to live with another person -- just like "living together" w/wo a legal agreement or document.

It's also like bringing home the first child and each child added -- it's a family, a growing and changing dynamic --where adjustments and considerations are a part of everyday life.

Think about how beneficial it is to have another person in your life 
someone to share time and experiences with everyday.
                   
It's a different kind of "life" and "living" -- less for the self and more for others.

It's like adoption.  You bring in a child or young person to your home, the family unit, only this is an "adult".

Have we turned to domestic animals to replace additional people? They're nice to have but they also require care, time and add cost.

There are differences, admittedly.... depending on the age of the child, usually the "family living together unit" is for fewer years...the "child" grows up, gains abilities, can share in the responsibilities of family life

THE ADULT joining the family grows older....usually experiences more "need" from physical or mental challenges.... has decreasing abilities and often special needs

We chose to have "an extended family under one roof", to provide for others in need who added to the whole of the family unit. 

THESE ARE THE VERY SPECIAL PEOPLE who everyday in every way are living a life of sharing their lives... 

My In-Laws youngest son had Down's Syndrome. 

It was the early 1950s. They were told to "instutionalize" him. 

They were advised not to "take him outside the home".

They chose to include Tom as a part of their family.

He was an active part of their lives. He went where they went. He was given an education (they worked to get Special Schooling and programs started). Tom (in younger years, "Tommy") was a part of our lives and proudly walked as a part of our wedding party.

Listen to your heart. Do what you believe is best for yourself and those you love.

Statements you may hear others say:

We should be able to take care of ourselves...all our lives
If you save enough..
If you're careful....
If you plan right...
You won't need to "impose" on anyone; 

you can afford to live SOMEWHERE ELSE....

Some can. Many can't. Especially as the years go by.

We've redefined the family in the past several years.

We've redefined relationships.

We've redefined so many areas of life but we still have a "hang up" when it comes to multi generational living.

Multigenerational Living ....this is the life we shared, we made together, we chose...and I am grateful every day as we worked to make it a life worth living . . .  for each of us

A relationship that enabled and gave value and opportunities to each family member.

A lifetime of caring, sharing and supporting one another through challenges & times of great joy.

Learning from one another and about ourselves.

We told Mom...who'd lived alone when I went away to college and since I was married, who worked and had her own apartment....when we learned she'd broken her wrist ... 

It's a choice you can make each day and you can choose to leave at any time. 

We will always be there for you whenever and wherever we're needed.

That was November, 1971 and in November, 2010 the manipulation and control of an abuser who came into our lives could not, in the end, separate our multi generational family. 

We, each family member, are who we are today because we opened our minds, our hearts and our home(s) to share a life we treasure now as we did when it was being created.

A family is created by the people who join together; it's not age restricted or limited to direct blood lines throughout.

Yes, YOU can become a multi-gene family. It's your life, not theirs!

Kelsey Grammer, Whoopi Goldberg, Teepa Snow Are Dementia Advocates

Reading this blog you might think we're negative and only see what's wrong with Dementia care especially in Long Term Care Facilities.

Our experiences are definitely more on the "dark side" of Elder Care and especially Dementia care but within the darkness has been ENGLIGHTENMENT and that is what we also share in this blog.

We realized we were not alone in our experiences. Advocating, becoming involved and networking, we heard stories similar to our own about Undue Influence, Abuse, Neglect and poor Senior Caregiving.

Generally, people who have these experiences are often consumed and confused just trying to survive another day dealing with dementia.

We've decided to raise our voices and provide actual personal experience with Dementia/Lewy Body Dementia) to build awareness and provide opportunity for advocacy and change.

There are a few prominent and easily recognized people on the "cutting edge" trying to change how Seniors with Dementia are seen, cared, and provided for. 

Teepa Snow is one of those rare individuals whose voice is growing stronger, louder and certainly more visible with her website http://www.teepasnow.com/  and parts of her videos which you can see at https://www.youtube.com/user/teepasnow

We found one of her videos when searching You Tube sometime after Mom was initially diagnosed with possible/probable Lewy Body Dementia in the mid or late stages.

At that time, there was very little on Lewy Body Dementia available on the web; this was Spring 2012 and it seems like an eternity has passed instead of just two years with the NEW and visionary entries on LBD on many sites. (Reposting this entry; it's now November 2023 -- almost ten years since my Mom passed.)

Teepa's approach to caregiving for Dementia patients focuses on her work with patients directly as an Occupational Therapist. 

This branch of Therapy, in our opinion, is the one least used in facilities mainly because there is very little financial support through Medicare and Medicaid for the general population.

In Mom's facility, almost all Physical Therapy was provided in a special area or room with varying types of equipment. It was "prescribed" and therefore could provide revenue.

Occupational Therapy tends to use everyday items to rebuild skillsets and can often be done outside of a specific location including the resident's room or the patient's home. 

In facilities and leaving hospitals for Rehab, the coverage by many private insurances and definitely through Medicare/Medicaid, is geared towards physical therapy with occupational therapy seen as aiding stroke victims and sometimes to regain basic skillsets like eating, dressing and other personal care areas. 

(Note added Oct 2023: Medicare seems to be changing and covering more Physical Therapy. Not certain about Medicaid.)

Teepa broaden's the approach of caregiving to every person, especially those providing the daily services (Aides, primarily but also Nurses and Doctors) to specific ways and means to touch, talk and see what is visible and what is hidden in providing care ensuring the safety and well being of individuals with Dementia.

We need more advocates like Teepa Snow within the industry of Senior Care!

HATS OFF TO VOYCE! It's the Ombudsman agency in the metro St Louis, Missouri area. They have changed to providing awareness, building knowledge with the general public and continuing to "supervise" Long Term Care within the limited bounds provided by the State of Missouri. 

YOU CAN MAKE A DIFFERENCE

The reality in many facilities is the Activity Department is the one that is given the responsibility of developing "social interaction" and various other areas. 

The challenge becomes anyone can go to Activities but you have to have "orders" for Occupational Therapy from a Doctor and that is reviewed for type and extent by the insurance companies both private, State and Federal.

What Teepa teaches are ways to live, work and play with individuals in various stages of Dementia. She also specifically addresses Lewy Body Dementia, how it differs and specific ways to cope with this roller coaster Dementia.

https://www.youtube.com/watch?v=U6kz-mcNNzo  and
https://www.youtube.com/watch?v=WRC3WLSQSq8

IMPORTANT NOTE: Teepa provides programs to various organizations and groups, some of her more informative presentations are located on sources not accessible through just searching You Tube with Teepa's name. Suggest as we have done you use her name and also a subject area like: Lewy Body Dementia.

You'll bring up various videos including one by Whoopi Goldberg who's become a spokesperson for the Lewy Body Dementia Association. 

Here's the connection to Whoopi's PSA: https://www.youtube.com/watch?v=FcSYg4xtVus  

and to one from Kelsey Grammer https://www.youtube.com/watch?v=eRg2RqQqnNo

Listen, Learn and Spread The Word -- 

Today, resolve to send three people this blog entry  or blogsite . . . 

it's important to their health and the health of family members and friends . . . 

to become aware of LBD and Senior Care Challenges and possibilities.

Thank You for reading my Blog, for positively changing our Seniors/Elders lives, who deserve recognition for all they have given, accomplished and endured.

Is Abuse Hereditary?

Standing aside, not willing to participate or give credibility to words spoken, actions taken.

Striking out physically, mentally and emotionally no longer tolerable. 

Years spent trying to maintain a relationship; trying to maintain a sense of family. Enough! 

A day is coming. My voice cannot be silenced. I will not be manipulated, controlled as my alcoholic father did for so long. 

His actions took him down physically, finally, and my youth hoped against hope there would be change he would choose ... he never did. 

A life of projecting his internal pain outward was one I would never imitate, never accept and never allow to be done.

Is there a characteristic, a genetic tendency to take risks and to be abusive?

Abuse takes many forms and often the abuser will not accept their actions as harming another emotionally, mentally or physically but instead sees their words and actions as "justified".

Abuse is consistent, pain and punishment replacing rights, beliefs, abilities, possessions.

The Abuser needs control and the person abused often will not Surrender willingly.

Silent or Interactive Abusers stimulate the actions and words of others and often are physically and emotionally involved.

Abuse that is supported is destructive of the self and the abuser, it is a cancer in the fabric of life, expanding, subsiding for times, focused inward, closing off the light. 

The abuser must find a "target"  to move their life problems and challenges onward, incapable of resolving life's challenges. 

The abuser uses what feels the most valuable as a target. Grown children often use contact with grandchildren to hurt/harm/punish their parent(s); find ways to negate any action present or past and distort it to conform to their need to punish.

Abusers often transfer a current or recent experience with someone other than their "target" and couple it with blame and assignment of ownership away from the actual perpetrator, past, current, ongoing or historical.

Following in a previous generation's footsteps -- is it hereditary or is it a choice that's individually made?

As The Twig Is Bent So Grows The Family Tree

Pre-Note: Written after my husband passed and my mother, I reflected on how my oldest son, living hundreds of miles away, shown in earlier writings about his "unwillingness" to help, decided his sister and I should "downsize" and leave the only home she knew and the very special place where memories still live for me.

Sitting at the kitchen table, looking out the window, family gatherings and everyday events come to mind.

No, my  son, I could  not sell this house; not now; not yet and not then -- when you told me how wrong I was about "keeping it" after Dad passed.

With all its challenges as it ages, like I am also doing, it is a comfort, a haven of memories and peace of mind. 

Yes, there have been several times when I could have used "your" help but I would never ask you as the price I had to pay isn't worth the cost.

We've stumbled, we've even fallen along the way but through it all I had your sister, my daughter, and when I've asked, your brother, there to guide, to care and to understand it is my life, still, while I can and am willing to live it in ways you do not comprehend.

You have chosen to walk another path, one of distance and eventual complete separation. That is your choice. It is not how you lived, it is not how we taught.

To you,  it's a "big" house and needs repairs and so much more. 

To me, it's a respite, a hope and a future without having to give up,  give in and try to hold on for dear life -- been there, done that not just since you were born but many years before with my Mother supporting, caring and "there" for me, for us.

You live hundreds of miles away and seldom come to visit. 

Yet you want to "manage" my life. Why? Because you believe your "knowledge" from buying two houses and renting them give you the ability and even "the right" to decide how I will live?

I admit, without your sister continuing to be a part of my life I would not have been financially able or capable. But you would not be able to provide for your family of five if your wife wasn't working and you didn't have a good job. In your way you also work together to gain and retain what you want, what you need.

We all make decisions; we live lives we choose with parts that are given and parts that are taken.

Looking out the window I see the towering Oak tree that once was a twig cut from your Grandfather's Oak in the home they lived in as long as we have now. 

I placed the twig in water, allowed it to root and then Dad and I planted it in our yard; a symbol of continuity, of family and of the love we had for one another -- especially now that all of them are no longer with us.

Your father planted it after asking me where I'd like for it to be. 

I chose far enough away from the house where it would get sunlight and have room to grow to its potential.

Today, it towers over us, reminding me with its' beauty, it's welcome shade on hot Summer days and even its bare branches covered with snow in Winter reminded me how Seasons, of life, pass and bring their own beauty and "gifts" to each of us.

The tree is "family", what it should be, growing day by day, able to stand alone yet benefiting all around and a reminder of those who shared life with us, my husband, your father, my mother, your Grandmother

So fortunate and privileged were we all to build this dream, carved out this space to grow our lives and shelter our extended family.This wasn't our first home; it was the fourth one we called home.

We moved as Dad moved up the corporate ladder and then to this place, our "forever home" where we chose to spend so many years learning, growing, working -- together.

It was a little bit of a reach but it gave us what we valued -- a yard back and front where you and your siblings spent time, each of you had your own room including Grandma who came to live with us when you were two months old and moved with us around the country before settling here. 

When your sister "came along" we added another bedroom and bath in the "lower level" aka "the basement". We couldn't afford to finish all the area; you had a "separate" bedroom and didn't have to "share", as many siblings do, when a family addition arrives. 

It was and is HOME.  It was and is MEMORIES.

And, I, my son, am like my Mother, with whom you spent your life as we did ours; you grew from a small child into a grown man and benefited along the way from three adults loving you, caring about you and providing for you -- and your siblings--even when we should have said "enough" and "no, we can't.

If we believed it was beneficial; we found a way. And that was for each, in their own way, as one received, so did the others. 

There were no "favorites", none was provided for beyond others that included a short time as Guardians for your Uncle's grand-daughter.

As the twig is bent, so grows the tree....but the tree that is moved to another location also responds to where it is moved...and that can affect the shape, height, even the way the tree responds to the elements around it.

You chose and choose to make choices every day. 

Perhaps you'll reach your full maturity some day and recognize how important it is to bend, to move "with", not against winds that blow. 

Perhaps you have in some ways in your personal and professional life; now it's time to adjust, to understand life is more than just what surrounds you every day.

Someday I will leave this house. It will continue in some form, another shape, another owner -- your sister, as that is our plan.

The Seasons are changing. Soon Spring will arrive. Some days already show signs of warming and new growth and development from animals to plants. 

When will you change, my son? 
When will you have the courage to reconnect? 

I have the memories but it's not the same. 

It's been your decision to disconnect yourself and your children.

It is not what you were taught; it is not how you were raised.

I continue to walk my life's path. 
I make decisions and plan.

I continue to work.

Your sister agrees and works each day with me to survive/thrive.

Looking out the window at the tree I see new growth.

I hope someday soon to see new positive growth from your part of "The Family Tree".

Shock & Awe: CBS Morning News Reporter Brushes Off COVID-19

The following was written while still deep in COVID. I held onto it, finally published it on March 20, 2020, in reviewing noticed some areas that needed expansion so today, August 14, 2023, going over my "work" I decided to review and add a few comments and then publish.

BEGINNING OF PREVIOUS WRITING ON SUBJECT:

Today I thought I was listening to three early morning commentators who were focused and understood the severity of the warnings and the guidelines for COVID-19 as I watched the CBS Morning News.

Behind the scenes, in "real" life, apparently it's "life as usual" for those who stand or sit before us and offer to tell us "what's best" and "how we should get through" this life challenge.

Anthony Mason actually shocked me this morning when a segment meant to show how some late teen/twenty somethings were on the beaches, at restaurants and bars and basically "laughing" in the face of this killer bug because they thought "It's not coming for me, so why should I care?" showed how he wasn't taking seriously the level of this world encompassing problem has been and continues to be.

IMPORTANT:  I know many people of all ages who do not act this way and they are to be commended for their mature approach to life as they will continue to be enabled and enable others. I applaud and support them; they are amazing.

My point about Anthony Mason, not sure about his age but he's listed as 63 -- old enough to know better but possibly believing he isn't "that old" the COVID-19 will come for him, recounted how his daughter  had told him recently he shouldn't be going to "the Gym" and Mr. Mason said, it's not closed yet so I can still go.

Could this be the exact type of "think" that has grown and developed COVID-19 to the level we're at and climbing so high we're considering using Cruise Ships and Major Hotels as "hospitals" or places for people: 

What I want, what I need, what's best "for me"? Can we not think rationally and realistically without "someone" making rules we have to obey rather than knowing when we should be capable of thinking rationally and realistically about our actions and behaviours effect on others?

Mr. Mason, you're reacting like one of those on the beach. It's something you want to do and since there's no one taking an action to stop you from doing it, what's the harm .... to you.

And, I do understand the financial effect as this is one of several life challenges 

That's the point, Mr. Mason, we're being told "we're all in this together" but the reality is some of "us" are still believing "we" are above and beyond and can do what we chose at least until someone forces us into "complying".

Where have ALL the flowers gone....When will we learn, when will we ever learn -- to quote a popular song from the 60's. Read and listen carefully -- not one type, not one age, ALL. 

Like a "bee", you're moving from flower to flower "polinating" from what's in/on your body and you don't even notice it because you believe IF I DON'T SHOW SIGNS, IF I FEEL ALL RIGHT, there is no problem for you or for anyone else.

COVID-19 is like other types of serious diseases -- mumps, measles, chicken pox and more serious types -- some people can be carriers and not affected. Innoculations are critical and so is using common sense to realize we can't always know when we become infected, how it happened, if we're even a carrier.

Almost all of the people who "survived" the last epidemics that were highly dangerous are no longer with us even though they made it through WWI, WWII, The Great Depression, The Gold Crisis, SARS and so much more. 

They left records, wrote journals, passed down oral history -- take time to read or listen to their stories of depression, oppression and survival through caring for and about others.

Yes, Some listen. Some understand. Some try to educate.

In today's "tech world", where so many voices are raised all at the same time, perhaps it's just gotten too  challenging to sift through the "noise" to get to what's important.

It isn't "all about me", it's "all about we" -- turn that  one letter upside down and it's world changing.

See the reality of everyday and every way you and I are dependent on others, dependent on what they do, dependent on how so many must take jobs others would not consider -- from trash to those who maintain our buildings and our homes and beyond.

They need our recognition. 
Now and in the future we're trying to ensure.

What we forget, Anthony, are lessons we may need to be taught again. 

Why this world event? Why now?   Why Not.

Reach for the Stars, Anthony, reach out and encourage each person to find at least one other person they can add to their "family" of mankind through assisting and encouraging.

Go to your shelves and closets of what you believe you'll need and find a person or family you can help. 

When we sacrifice we understand what those who went before us actually did. 

For some this means finding a resource for this person because -- they don't know anyone; not in their "circle of life".

That's the real challenge, Anthony.

Many of us have circles that are closed and exclusive when we aren't reaching out to find ways and people who really need help -- the overlooked, the overworked and the over challenged -- just to survive another day, week or month.

Giving when we have is easy. 

Giving from what we may need but choose to share is character that has been missing or mislaid for a very long time in many ways by many people.

You have the ear and the eye of the public, Anthony.

Remember they're listening. They're learning. 
And, many will do as you do.

Continuum of Care or Continuum of Income for Owners?

I received one of many requests to contribute to an organization most people over the age of 50 know the "parent" organization, AARP. This is a "separate" entity from AARP and so it has the legal responsibility to file for public review of its annual tax reports to remain a 501C3.

I'm sure you're on many email lists also and see appeals from many sources. 

What do you do? 

If you recognize the name, believe they're "legit" and support their "cause" do you send some money their way?  

Apparently many have because in 2019 they were able to pay their lead person, a salary of well over a million dollars which financially is acceptable and reasonable .  but if all they're doing is "advocating" and not directly providing "in home" services including transportation, food, assistance with tax payments, utilities and other ever increasing and "pushing" all but the very well employed or those with extensive "retirement" funds -- out to "greener pastures" -- meaning living in a "communal" environment...well, you be the judge.

What are they actually doing to directly GIVE to the individuals they "represent"?

Take their latest survey, the "cause" for the email solicitation which asked the question:

How many adults over the age of 65 want to stay in their home as long as they can?

Easy for me; how about you?  90% -- the highest percentage answer --- CORRECT!

Alternative choices now include "upscale" living experiences complete with a $500 to $5000 (or more) "deposit" to hold a place, to "socialize" with others who have made this decision to "climb on board" and live together -- month to month, independent living, no details of anything other than the drawings, advertising and marketing pictures and verbal bravado available.

Come for dinner, pay a fee, join a "club" where membership is only limited by the number of people they can gather together to agree to "join". It wasn't clear if or how much of any "remainder" could be refunded if after one or two "events" someone decided it wasn't what they expected or wanted.

WHY IS IT THESE PEOPLE BELIEVE we Seniors want to be continuously entertained, joined together at the hip with people we barely know, live together in  "community" in a High Rise development and make this our "forever home" for who knows how long?

It's no longer "Long Term Care' -- it's CONTINUUM OF CARE with bells and whistles you have to see to believe. It's "country club living" -- at least on the outside looking in. It's a "closed club" dependent on those with significant savings/income to afford this "special treatment"

TAKE A CLOSE LOOK AT THAT CONTRACT YOU'LL SIGN -- and better have a lawyer on retainer because many have "clauses" allowing financial adjustments or are very "open ended" -- the words are so general they can usually do or take action in almost any way.

.....  and realize you GIVE UP EVERYTHING YOU HAVE because the cost of entry is the major asset, for most people, their home.

Why is it many people, especially those in their 40's an 50's are so determined to "push" those 65 and older into "Special Older Care Facilities"?

Logic and Reasoning Missing With Medical Personnel

Written on November 13 2020; posted June 24, 2023 -- 

Why so long to publish? Honestly I felt like no one was really listening. It's important to raise awareness, share the times spent, including the challenges which were so prevalent.

I realized through all my involvement raising awareness of all Dementias that Lewy Body Dementia needs more professionals to get behind this type of Dementia and share their personal knowledge and experience.

Life has seasons, each more beautiful than the other with some bringing times of unrest and challenges. 

It's Autumn outside and inside today. Trees are almost bare of leaves. 

Just yesterday, figuratively speaking, the bright colors burst forth and cast a colorful glow all around outshining the colorful birds at our feeder and the late Summer flowers still blooming far past their usual time.

Some would say it's the Winter of life when we grow older and begin those years most describe as "downhill all the way" but I believe Winter is closer to the end and I've just started another new beginning.

Gifts in life appear and disappear; some are tangible, others are whisps of air drifting or floating past. 

We decide the road we travel with each day that passes.

Amazing gift this Summer. So needed with COVID-19 wrecking havoc all around.

A positive that began with a strong negative, lots of concern and a little fear.

June 1, 2020. Took a break from being in front of the computer trying to get through another day of uncertainty about life in general and managing to keep trying to understand which of the directions is the "right" one -- at least for now.

ADDENDUM:  It's June 2023. Not quite three years later. I decided to become more active advocating for Seniors and especially those with Dementia and other challenges several years ago. Accomplished some steps forward and plan to continue to find ways to share and work towards better lives for our Seniors.

I've attended many conferences especially those put on by the Ombudsman organization (each State is required to have one by Federal Law but there are still a couple of States that appear not to have followed this directive). 

I've gone to our State Capitol to talk with Legislators about upcoming opportunities to assist our Senior population. 

I'm planning a trip to Pittsburgh in July 2023 for a special conference on aging and changes in how people from many countries are stepping up to acknowledge "Elders" wants and needs, not just what society thinks they should have.

COVID is "over" although there are still updates on "new" shots so doesn't this mean there's still a challenge?

Ironically I did not get it but my Millenial daughter did. However, I think a couple of weeks ago we were once again "visited" by either this challenge or certainly something mimicking COVID. Glad we were both fully up to date on our Inoculations.

After a trip East, made to attend a funeral of a family member, within a day of returning home, I became very dizzy and weak. For the first time in several years, I asked to be taken to a local Urgent Care facility we'd once tried. 

Disappointment in the medical facility. Three "medical people" each tried to convince me to take significant testing inolving MRI's and other equipment.

Know it was because of my age and "risk factor" and my vitals were "up" quite a bit. But the cost, even at this supposedly less expensive medical facility was still in the four figures range and probably five figure if I'd had them all.

However, reason told me this was something I'd "caught" during the participation in the very large funeral and wake with so many "unknown" people -- and we've gone back to "hugging" and "touching". 

Shortening the story -- within 24 hours my Millenial daughter was as sick as I was. It was helpful I was one day ahead because even though I was really, really, sick, I could help her to get what she needed. Apparently some kind of "virus" in Pittsburgh decided to travel back with us.

Although I wasn't "applauding" her challenges, I felt verified for my belief, as someone who has a genetic history of strong, long lived women in my mother and grandmother, it was related to our trip and socializing with people who we didn't know and haven't seen before or for a very long time.

We might believe "it's gone" -- but viruses and COVID have a tendency to continue to "adapt" and "change" and we must consider this as we move forward. 

Doctor finally provided a prescription for a general antibiotic -- but he'd sent the other two "different" staff members in again to either evaluate or try to convince me to take the tests.

Do not suggest YOU make your decisions based on mine. Just recounting how important it is to know your own body.

IT'S THE SAME FOR LEWY BODY DEMENTIA.  The person may have some or all "features" of the medical challenge but there can still be a "part" of them that needs to be heard, to try to understand where they are and what "they" need and "want".

AGEISM is strong in our society. Categorizing someone physically, emotionally or otherwise can be a mistake. 

We need to ask more questions related to the situation and then consider ALL the possibilities whether a professional, or someone without certifications and degrees.

LISTEN. ASK. THINK. People deserve to be treated not by the years they've achieved but by respecting their choices.

Father's Day 2023; Wish You Were Near

I'm always amazed when people, especially men, ask me why I didn't marry again after my husband passed as I wasn't "that old" AND "life goes on".

To be honest, I'd found my life's love at 18 and a freshman in college and although perhaps he wasn't as certain as I was, and it took him four plus years and an ultimatum, to move down the aisle, we were meant to be, bringing two sons and finally a daughter into the world, now grown and two with some very "grown children" of their own. 

We met when I was a Freshman and he a second semester Sophomore. He was four years older, had left college, entered the Air Force and then became a member of the Air Force Reserve. It was a time of conflict in another part of the world. He served in Forward Air Control and continued in Reserve Service even after we married.

We had hardships and celebrations -- typical life together. 

We experienced journeys and challenges, always together and always looking onward and ahead of those times to what could be ahead.

Know not everyone can turn the pages in the book of life and see past the challenges, the downturns, the trying times physically and emotionally, to see creating a life together was a craft, a skillset you work together on to start and . . . to finish.

The "hole" has become the "whole" as it's been more than a decade with many life's challenges and changes -- just as "we'd" experienced before "I" experience as "me" rather than "we".

Learned a lot. Forgot a lot. Set aside and reached for more of some.

Memories of past Father's Days spent with your Dad and other family members -- and your Grandfather who we had with us and we introduced to our first child, his great grandchild -- he left us many years ago and his son, your father, went before you by a decade.

Family gatherings. Laughter. Joy. Sharing and caring. What happened to the real meaning of family where people admitted their mistakes and talked through the challenges and the heartaches caused?

Perhaps the difference was . . .  "we" . . . moving down the road to replace those who went before, felt an obligation towards them, while some of our children feel a need to "replace" rather than add to family structure.

Thunder outside. Rain earlier. Watched the geese on the lake. Told the cat it wasn't a good time to go outside and play, as she so loves, in the fenced garden. 

The tree from the sapling, so slender and short, now towers above us and our arms are not able to join two people around its trunk as we could just a few years ago -- or so it seems.  

Your father cut off a three foot long scrawny limb, put it in water, we watched it start roots, and I marveled at its strength, beauty and tenaciousness as we'd seen the "parent" tree survive one of the worst local tornadoes that came through our metro area a few years before our marriage.

Do I still think of you? Yes, often. 

When there is parting it simply means a part of you changes just as flowers and trees change from season to season, so does love and life.

Our children are grown. 

I feel there are many years ahead for me to share with them and their children even though two of the three are many miles away.

How I wish it were "we" instead of just "me". 

Time seems to move differently yet similarly and that's so strange when I think about it. 

Happy Father's Day and to you are reading this and have people in your life you lovingly call "family", cherish those who are here or there, with you, or far away. 

Memories are place holders in life. 

Create many and set aside those that cause disruption as they have far less value when viewed as yesterday when you're a part of today.